Jack successfully nipped another recent pattern where she'd go into his bathroom first thing in the morning, use his towel to wipe off the counter tops and toilet seat (nice!), and then neatly rehang the towel. Yes, you can picture the next thing that happened....he'd sleepily wake up to get ready for school, stumble into the bathroom to take a shower, and then USE the nasty towel to dry himself oblivious to what had happened prior. I'm not sure who figured out that she was doing this, but Jack quickly created a way to test if she had been in there or not by hanging his towel in a weird way that she would never replicate. In the morning, if it was hanging neatly, he knew that she had been down and tidied up. He then would go and get a clean towel before taking his shower.
Have I mentioned the verbal stim and how it's making me crazy? I know that I have as it got a little FB conversation going and maybe stifled my future sharing abilities a bit. A mean-ish slap down had me rethinking this whole blog thing. But I've recovered and will persevere. Not everyone will like what I have to say and that is OK. So back to the verbal stim. Picture this: Upon entering Molly's bedroom, your ears will be assaulted with sounds from a variety of sources. She has her TV on the Disney Channel, she has her school iPad playing a 3 minute free video clip off of Disney, and then she has her home iPad blaring music. She has the little itouch that died last month sitting there too and she will pretend that that is her phone. I can't stay in there with the loud assault of too many confusing sounds on my ears. It's mass confusion and how can she possibly know what she is listening too? When the 3 minute video ends, she restarts it or finds another freebie. I think that she has to make her verbal aaaAAHHHHHH to cover the confusion? I KNOW that I need to remove at least one of those iPads.....okay, okay...I'll go do that now. She spends too many hours alone in her room and though that makes it easy for me, I also have horrible guilt about it. I'd rather she had something meaningful to do with her time. Like read a book. Or maybe sit in silence and meditate. I think her brain might like that and thank me.
What's hard with a special needs child is that I can't say "Go find a friend", "Go hang at the park", "Go play outside"or even "Go play X Box" (something Jack has NEVER heard me say :)). She isn't like her 17 year old peers driving around going to the movies or to the pool or just chatting at each others homes. EVERYTHING that she does entails ME, or Brooke, or Jack. When you have little kids, you are used to being that person that hauls the kid around and meets their every need. But you also know that your kid will grow up and start having a lot more freedom from you (by 5th grade even!!). We don't have that. I'm scared to think that I never will! I still make every meal for Molly. Every meal. Maybe this is why I'm sick of cooking?
So the key to both Molly's happiness and mine is to keep her actively engaged. She loves hiking, so one of us a day tries to get her out on the trails. She loves to swim, so weather permitting, we try and get to the pool. So there, we have 3 to 4 hours of our day taken care of.....that leaves a lot of down time. Too much down time. 9 hours of summer school per week starts this week and having that schedule will be awesome. Molly LOVES to use her brain, have a routine, and school is the perfect place to push her. Tuesday...please get here fast!
Overlooking "The punch bowl" in Aspen on our way home from the Special Olympics swim meet. Note the Gold medal and ribbon. And the twins. :) |
6 comments:
First off, I loved this post! Secondly, you cannot stop this blog (too many people can learn from it, enjoy it and understand more about Molly) and you cannot stop your facebook posts. If someone does not like it, guess what? They can either stop reading it, or move on. I guess my point is this, no one has lived in your shoes except Brooke and Jack. People can try and understand, people can empathize, but honestly NO ONE can get it. The fact that you can be HONEST is amazing, and you should be congratulated for being able to do that. All parents have so many things we feel guilty about, and in reality we are the ones who should look at all that we have accomplished with our kids. Just remember, you are a great Mom, and keep moving forward with that. If someone has something negative to say about it, please ignore them!
It's taking me way TOO long to learn that I can't please everyone and just to relax into it. That's the curse of being a woman I think? We are pleasers. Thanks for your kind words Leigh!! I'll keep at it :)
I love that you are keeping it real my friend. Unfortunately for some, judgement is so easy to do. What a poor waste of time and energy in my opinion. We all have different shoes we walk in and nobody knows our individual path. Keep telling your stories. Shame to those that judge from afar!!! Much love…M
oh gosh Kathy - so many things going through my brain right now. The last two weeks have been pure hell for me with Ava. maybe we can chat
feel free to call me anytime!! you are in the hell years for sure! my moaning and groaning now is NOTHING like when molly was 5 years old like ava.
thanks marth. it was such a unique situation and has had me thinking so much about it, that i'm sure i'll have to blog about the whole thing soon. thanks for your continued support!
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